EPIC-Norfolk: Participant Panel
Introduction to public involvement
NHS Research and Development (R&D) strategy is committed to
involving members of the public in the work it undertakes - not as
"subjects" of research, but as active participants in the research
process. Members of the public have already played an important role in
some areas of R&D in the NHS, but there is room for improvement.
Various organisations have been set up to encourage the public to become more involved in research. The aim of these is to improve the way in which research is prioritised, planned, conducted and how the information obtained is communicated and used.
It is now acknowledged that research which is directed towards the public need is more likely to produce useful results which can then be used to improve practice in health and social care.
As part of that commitment, EPIC-Norfolk wishes to actively promote greater participant involvement in our research. For this reason, we have recently set up an EPIC-Norfolk Participant Panel to act as a consultation group to advise us on our research. We see the formation of this panel as a partnership between EPIC participants and us as researchers.
Members of the EPIC-Norfolk Participant Panel can be involved in designing of health questionnaires, writing of lay summaries, participant information, dissemination of results and providing a lay perspective on potential projects we may be thinking about for the future.
|5 July 2010
EPIC Participant Advisory Panel meeting was held at the Assembly House, Norwich
Members of the panel were welcomed and shown the latest Eastern Diabetes Research Network (DRN) Newsletter. The glossy newsletter had an article and photographs covering the scoping meeting of the EPIC Participant Panel meeting (March 2010).
Following feedback from Members it was agreed that the panel will be known as the EPIC Participant Advisory Panel (EPAP).
HLEQ Questionnaire- Panel members were thanked for responding to this review. Many suggestions were received and the feedback will be used for future planning.
Panel membership was discussed and it was agreed to raise this again at the AGM and to ensure that there was a “bank” of participants who may be interested in becoming Panel members as vacancies arise in the future.
The EPIC Website Committee requested feedback on the layout and content of the EPIC-Norfolk Website. A ‘live’ projected website view was used throughout this session to navigate the various pages of the website. All opinions and suggestions made relating to the website will be discussed at the next EPIC website meeting and decisions fed back to Panel members at a later date.
Opinions were sought on the format, content and frequency of the EPIC Newsletter. A Format of two sides of A4 paper was suggested- with size and fonts recommended by the RNIB. The length of each newsletter would vary depending on content.
Past panel meeting summaries: 22 March 2010
For more information about the Panel please contact Nichola Dalzell at firstname.lastname@example.org, or on 01603 218165.
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last updated: 22 July 2010